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Crohn's Disease support group collection, circa 1980-2007

Overview of the Collection

Col
Diamond, Nancy E.
Title
Crohn's Disease support group collection
Dates
circa 1980-2007 (inclusive)
1982-2000 (bulk)
Quantity
0.25 linear feet, (one half-size box)
Collection Number
2017-005
Summary
Crohn's disease is a chronic inflammatory disease of the digestive tract which causes a variety of symptoms. This collection, which dates from circa 1980 to 2007, consists of newsletters, organizational communications, pamphlets, recipes, and research on alternative treatments, documenting decades of active involvement with the Crohn's community.
Repository
Oregon Health & Science University, Historical Collections & Archives
OHSU Historical Collections & Archives
Oregon Health & Science University
3181 SW Sam Jackson Park Rd. MC:LIB
Portland, OR
97239
Telephone: 5034945587
hcaref@ohsu.edu
Access Restrictions

There are no restrictions on access. This collection is open to the public.

Languages
English
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Historical Note

Crohn's disease is a chronic inflammatory disease of the digestive tract which causes a variety of symptoms, including diarrhea, cramps, fatigue, and reduced appetite. The donor of this collection was diagnosed with Crohn's Disease in the late 1960s and joined several Oregonian and national organizations for information and support. Since the symptoms of Crohn's can cause both physical and emotional distress, support is an important factor, and this collection chronicles relationships with the disease and with other people living with it.

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Content Description

The Crohn's Support Group collection, which dates from circa 1980 to 2007, consists of newsletters, organizational communications, pamphlets, recipes, and research on alternative treatments, documenting decades of active involvement with the Crohn's community. The collection documents the ephemera of one person's history of illness, as well as the community of illness that surrounded her. Although largely limited to published materials - newsletters and other communications from support groups - it is an in-depth chronicle of the ways that people with chronic illnesses interacted with each other in the 1980s and 1990s. From these records, we can learn how support groups saw and presented themselves at a historical moment when a community of the sick was still a new idea. The collection will be of interest to researchers of the medical history of Crohn's, the history of peer support and advocacy among the chronically ill, and the ways that doctors through the years have explained Crohn's and headed off myths about its causes.

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Use of the Collection

Preferred Citation

[Collection title], Collection Number [####-###], Oregon Health & Science University, Historical Collections & Archives.

Restrictions on Use

OHSU Historical Collections & Archives (HC&A) is the owner of the original materials and digitized images in our collections, however, the collection may contain materials for which copyright is not held. Patrons are responsible for determining the appropriate use or reuse of materials. Consult with HC&A to determine if we can provide permission for use.

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Administrative Information

Acquisition Information

Collection donated by Nancy Diamond in 2017.

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Detailed Description of the Collection

  • Description: Assorted research on Crohn's and alternative treatments, including clippings, handouts, and more
    Dates: 1985-2007
    Container: Box 1, Folder 1
  • Description: Blinder Research Foundation for Crohn's Disease publications
    Dates: 1983-1989
    Container: Box 1, Folder 2
  • Description: Diet information
    Dates: 1989, undated
    Container: Box 1, Folder 3
  • Description: National Foundation for Ileitis and Colitis publications
    Dates: 1984-1990, 2001-2002, undated
    Container: Box 1, Folder 4
  • Description: Oregon Crohn's and Ulcerative Colitis Support Group publications
    Dates: 1982-1987, 1999-2000
    Container: Box 1, Folder 5
  • Description: Pamphlets on Crohn's
    Dates: circa 1980-1997
    Container: Box 1, Folder 6

Names and SubjectsReturn to Top

Subject Terms

  • Chronic Disease
  • Crohn Disease
  • Ileitis
  • Self-Help Groups

Corporate Names

  • Blinder Research Foundation for Crohn's Disease
  • National Foundation for Ileitis & Colitis (U.S.)
  • Oregon Crohn's and Ulcerative Colitis Support Group
  • Oregon Crohn's-Colitis Chronicle

Geographical Names

  • Oregon

Form or Genre Terms

  • newsletters
  • pamphlets
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