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   <eadheader countryencoding="iso3166-1" dateencoding="iso8601" langencoding="iso639-2b" repositoryencoding="iso15511" relatedencoding="dc" scriptencoding="iso15924">
      <eadid countrycode="US" mainagencycode="orphs" url="http://archiveswest.orbiscascade.org/ark:/80444/xv82635" encodinganalog="identifier" identifier="80444/xv82635">ohs_2017-005.xml</eadid>
      <filedesc>
         <titlestmt>
            <titleproper encodinganalog="title">Guide to the Crohn's Disease support group collection
 <date encodinganalog="date" calendar="gregorian" certainty="approximate" era="ce" normal="1980/2000" type="inclusive">circa 1980-2007</date>
            </titleproper>
            <titleproper type="filing" altrender="nodisplay">Crohn's Disease support group collection</titleproper>
            <author encodinganalog="creator">Isaac R. Fellman</author>
         </titlestmt>
         <publicationstmt>
            <publisher encodinganalog="publisher">Oregon Health &amp; Science University, Historical Collections &amp; Archives</publisher>
            <date encodinganalog="date" calendar="gregorian" era="ce" normal="2017">2017</date>
            <address>
               <addressline>3181 SW Sam Jackson Park Road</addressline>
               <addressline>MC: LIB</addressline>
               <addressline>Portland, OR 97239</addressline>
               <addressline>hcaref@ohsu.edu</addressline>
               <addressline>https://www.ohsu.edu/historical-collections-archives</addressline>
            </address>
         </publicationstmt>
      </filedesc>
      <profiledesc>
         <creation>This finding aid was produced using ArchivesSpace on <date>2021-04-16</date>.</creation>
         <langusage>
            <language langcode="eng" encodinganalog="language" scriptcode="latn">Finding aid written in English.</language>
         </langusage>
         <descrules>Finding aid based on
          DACS (<title render="italic">Describing Archives: A Content Standard</title>), 2nd
          Edition.</descrules>
      </profiledesc>
   </eadheader>
   <archdesc level="collection" relatedencoding="marc21" type="inventory">
      <did>
         <repository>
            <corpname encodinganalog="852$a">Oregon Health &amp; Science University, Historical Collections &amp; Archives</corpname>
            <address>
               <addressline>3181 SW Sam Jackson Park Road</addressline>
               <addressline>MC: LIB</addressline>
               <addressline>Portland, OR 97239</addressline>
               <addressline>hcaref@ohsu.edu</addressline>
               <addressline>https://www.ohsu.edu/historical-collections-archives</addressline>
            </address>
         </repository>
         <unittitle encodinganalog="245$a">Crohn's Disease support group collection</unittitle>
         <origination label="Creator">
            <persname role="col" rules="rda" source="local" encodinganalog="100">Diamond, Nancy E.</persname>
         </origination>
         <unitid encodinganalog="099" countrycode="US" repositorycode="orphs">2017-005</unitid>
         <physdesc>
            <extent encodinganalog="300$a">0.25 linear feet</extent>
            <extent encodinganalog="300$a">one half-size box</extent>
         </physdesc>
         <unitdate calendar="gregorian" certainty="approximate" era="ce" normal="1980/2000" type="inclusive" encodinganalog="245$f">circa 1980-2007</unitdate>
         <unitdate calendar="gregorian" era="ce" normal="1982/2000" type="bulk" encodinganalog="245$g">1982-2000</unitdate>
         <abstract encodinganalog="5203_">Crohn's disease is a chronic inflammatory disease of the digestive tract which causes a variety of symptoms. This collection, which dates from circa 1980 to 2007, consists of newsletters, organizational communications, pamphlets, recipes, and research on alternative treatments, documenting decades of active involvement with the Crohn's community.</abstract>
         <langmaterial>
            <language langcode="eng" encodinganalog="546">English</language>
.    </langmaterial>
      </did>
      <bioghist encodinganalog="5451_">
    
         <p>Crohn's disease is a chronic inflammatory disease of the digestive tract which causes a variety of symptoms, including diarrhea, cramps, fatigue, and reduced appetite. The donor of this collection was diagnosed with Crohn's Disease in the late 1960s and joined several Oregonian and national organizations for information and support. Since the symptoms of Crohn's can cause both physical and emotional distress, support is an important factor, and this collection chronicles relationships with the disease and with other people living with it.</p>  
      </bioghist>
      <acqinfo encodinganalog="541">
    
         <p>Collection donated by Nancy Diamond in 2017.</p>  
      </acqinfo>
      <prefercite encodinganalog="524">
    
         <p>[Collection title], Collection Number [####-###], Oregon Health &amp; Science University, Historical Collections &amp; Archives.</p>  
      </prefercite>
      <userestrict encodinganalog="540">
    
         <p>OHSU Historical Collections &amp; Archives (HC&amp;A) is the owner of the original materials and digitized images in our collections, however, the collection may contain materials for which copyright is not held. Patrons are responsible for determining the appropriate use or reuse of materials. Consult with HC&amp;A to determine if we can provide permission for use.</p>  
      </userestrict>
      <accessrestrict encodinganalog="506">
    
         <p>There are no restrictions on access. This collection is open to the public.</p>  
      </accessrestrict>
      <scopecontent encodinganalog="5202_">
    
         <p>The Crohn's Support Group collection, which dates from circa 1980 to 2007, consists of newsletters, organizational communications, pamphlets, recipes, and research on alternative treatments, documenting decades of active involvement with the Crohn's community. The collection documents the ephemera of one person's history of illness, as well as the community of illness that surrounded her. Although largely limited to published materials - newsletters and other communications from support groups - it is an in-depth chronicle of the ways that people with chronic illnesses interacted with each other in the 1980s and 1990s. From these records, we can learn how support groups saw and presented themselves at a historical moment when a community of the sick was still a new idea. The collection will be of interest to researchers of the medical history of Crohn's, the history of peer support and advocacy among the chronically ill, and the ways that doctors through the years have explained Crohn's and headed off myths about its causes.</p>  
      </scopecontent>
      <controlaccess>
         <controlaccess>
            <corpname authfilenumber="n83209215" source="lcnaf" encodinganalog="610">National Foundation for Ileitis &amp; Colitis (U.S.)</corpname>
            <corpname rules="rda" source="local" encodinganalog="610">Blinder Research Foundation for Crohn's Disease</corpname>
            <corpname rules="rda" source="local" encodinganalog="610">Oregon Crohn's and Ulcerative Colitis Support Group</corpname>
            <corpname rules="rda" source="local" encodinganalog="610">Oregon Crohn's-Colitis Chronicle</corpname>
         </controlaccess>
         <controlaccess>
            <geogname authfilenumber="1204579" source="fast" encodinganalog="651">Oregon</geogname>
         </controlaccess>
         <controlaccess>
            <subject authfilenumber="D003424" source="mesh" encodinganalog="650">Crohn Disease</subject>
            <subject authfilenumber="D007079" source="mesh" encodinganalog="650">Ileitis</subject>
            <subject source="mesh" encodinganalog="650">Self-Help Groups</subject>
            <subject source="mesh" encodinganalog="650">Chronic Disease</subject>
         </controlaccess>
         <controlaccess>
            <subject source="archiveswest" encodinganalog="690" altrender="nodisplay">Medicine and Health</subject>
         </controlaccess>
         <controlaccess>
            <genreform source="aat" encodinganalog="655">newsletters</genreform>
            <genreform source="aat" encodinganalog="655">pamphlets</genreform>
         </controlaccess>
      </controlaccess>
      <dsc type="in-depth">
         <c01 level="file">
            <did>
               <unittitle encodinganalog="245$a">Assorted research on Crohn's and alternative treatments, including clippings, handouts, and more</unittitle>
               <unitdate normal="1985/2007" type="inclusive" encodinganalog="245$f">1985-2007</unitdate>
               <container type="box">1</container>
               <container type="folder">1</container>
            </did>
         </c01>
         <c01 level="file">
            <did>
               <unittitle encodinganalog="245$a">Blinder Research Foundation for Crohn's Disease publications</unittitle>
               <unitdate normal="1983/1989" type="inclusive" encodinganalog="245$f">1983-1989</unitdate>
               <container type="box">1</container>
               <container type="folder">2</container>
            </did>
         </c01>
         <c01 level="file">
            <did>
               <unittitle encodinganalog="245$a">Diet information</unittitle>
               <unitdate>1989, undated</unitdate>
               <container type="box">1</container>
               <container type="folder">3</container>
            </did>
         </c01>
         <c01 level="file">
            <did>
               <unittitle encodinganalog="245$a">National Foundation for Ileitis and Colitis publications</unittitle>
               <unitdate>1984-1990, 2001-2002, undated</unitdate>
               <container type="box">1</container>
               <container type="folder">4</container>
            </did>
         </c01>
         <c01 level="file">
            <did>
               <unittitle encodinganalog="245$a">Oregon Crohn's and Ulcerative Colitis Support Group publications</unittitle>
               <unitdate>1982-1987, 1999-2000</unitdate>
               <container type="box">1</container>
               <container type="folder">5</container>
            </did>
         </c01>
         <c01 level="file">
            <did>
               <unittitle encodinganalog="245$a">Pamphlets on Crohn's</unittitle>
               <unitdate>circa 1980-1997</unitdate>
               <container type="box">1</container>
               <container type="folder">6</container>
            </did>
         </c01>
      </dsc>
   </archdesc>
</ead>

